Good News: a Possible Breakthrough in my Health Issues

((Before I begin, let me just wish you all a happy feast of Our Lady of Guadalupe! I wrote a bit about the same picture that's hung on my bedroom wall for the past (almost) 30 years on Instagram in case you want to read it.))

I thought I was ready for my hematology appointment yesterday morning. I was cool, calm, and collected. Or, so I thought until I woke up sweating cold that morning. That cold sweat didn't stop until after I saw the hematologist... an hour after my appointment was scheduled.

I kept repeating, "Jesus, I trust in You" from the moment I woke up... 2 hours early. I tried to go through my routine -- breakfast, prayer, and getting ready to go out -- at a slow pace. I had intentionally done it to keep my anxiety levels down. Whenever I felt them go up a bit, I would stop and repeat, "Jesus, I trust in You" three times before I would resume the routine.

Before I left, I stopped and had a conversation with God. Since I was home alone, I said the words aloud. I don't remember the exact words but they were along the lines of "Whatever happens, I accept. If it's Your will, it will be done. If it's good news, I will rejoice and praise you. If it's not good news, I know you will give me the fortitude to endure it. Whatever it is, I will sacrifice sleep and go give thanks at tomorrow's daily Mass."

I drove to my appointment with unusually clear eyesight (I've been having eye problems for months, remember?). I decided to listen to "The Benedict Option" audiobook as a distraction. I took a longer but clearer (read: less traffic) route to my hematologist's office. "If I get there late, I get there late. But I'd rather go calmly than stress myself out," I told myself as I drove to the office.

I got there on time... but I ended up waiting an hour before I was seen. See, the hematologist I've seen for the past two years is out of the country. While it wasn't confirmed, we think it has something to do with his work visa since he's a foreign-born doctor. He had a delay returning the last time his permit expired, too. Anyway, because of this (and the office being unsure of when he will return), they gave me a new hematologist. I was warned beforehand about this; there were rescheduled appointments and blood draws for it for weeks leading up to the day. I just didn't know the actual appointment would have a wait time of over an hour.

As you can imagine, I sat there sweating cold out of nerves. I didn't know if my pancytopenia (the medical term for low red and white blood count and low platelets) was still around; if I was healthier than I was since my last blood draw at the last ER visit I'd had, two months earlier. "Jesus, I trust in You" I said before I prayed the St. Patrick breastplate prayer and texted a good friend to help pass the time.

I was whisked inside and I waited for the doctor once again, this time in the exam room. My noontime alarm went off signaling the time to pray The Angelus and Sext. I had taken my copy of The Little Office of the Blessed Virgin Mary in case I needed it. I took out my Rosary beads from my pocket and began praying the Angelus. I had just finished praying, "And the Word was made Flesh.. *genuflects* and dwelth among us..." and was standing up when the new hematologist came in. "This is it. Jesus, I trust in You," I said internally.

I was ready for whatever God in store for me... or, again, so I thought. I won't keep dragging the story for y'all so I'll tell you exactly what he said.

After introducing himself he said he'd gone over my charts and history along with my latest blood work. The good news was that my numbers had gone up. My white blood count had miraculously jumped up to normal in record time, from 3.6 to 4.6. My platelets went up 33k (from 102k to 135k) and I’m now currently only 5k under normal range. My red blood count and hemoglobin are still a little low but are now closer to normal range. He said that, given my history and my steady (for the most part) numbers, he thought it all pointed to an early rheumatology/autoimmune issue. When I explained that the ophthalmologist had ordered blood work because he also thought I had an autoimmune issue that was causing my eyesight problems (my bilateral optic nerve edemas), he said that it just further confirmed his suspicions. He said that it looked like it was all early stages of whatever was about to unfold and that no treatment would be necessary at the moment; we'll just keep an eye on things.

This is the first time I've come close to getting a diagnosis on anything! I was surprised and relieved. After so many years of dealing with low platelets and the anemia coming and going, here we had a sort-of breakthrough! I immediately thought about how the words "leaky gut" and the theory many people have made that perhaps that's what's wrong with me have popped up in recent weeks. A parishioner friend of mine even lent me a book on healing the leaky gut when I went to Mass last Friday (the beautiful First Friday I wrote about here). That's not even counting the dream I had nearly two years ago in which I dreamt that St. Giuseppe Moscati had examined me and told me to do a bone broth diet to heal my gut; a dream that also featured St. John Bosco. I even screen captured the tweet for future reference.

Y'all know this tweet is old because I haven't used that profile picture in years. Also, my apologies to St. Giuseppe for butchering his first name. It was during the time when I was still learning about him.

Perhaps this is all part of my 54-day Rosary novena intention; I've been praying for better health and the ability to expand my restricted diet. A leaky gut will make it seem like you have allergic reactions to many things -- especially foods -- so this could be the breakthrough I've been praying for! I am definitely going to try healing my gut just in case this has been the issue all along.

Before I end this post, I also wanted to share one more thing the good hematologist said to me. As he was leaving, hand on the door, he stopped and looked back at me and said, "Are you married, planning on getting married, or in a relationship?" I confirmed that I did want to get married one day, but I didn't know when that would happen. He then said what I was not expecting, "With your history and numbers, you can get pregnant. You can have children as soon as you'd like. Usually, there are worries about platelets dipping for people who have ITP or other blood disorders, but it shouldn't be a problem for you." I was completely dumbfounded. The thought hadn't even crossed my mind (for obvious reasons) yet I felt an enormous wave of relief. God willing, I can have babies and not worry about it affecting my health (at least, not my platelets) because it looks like it may all be an autoimmune issue rather than a blood disorder.

I left the office feeling lighter, a lot more hopeful, and intensely grateful to Our Lady for her intercession and to God for everything.

I knew there was a reason why my appointments kept getting pushed back; why I had to keep rescheduling blood draws and appointments. Not just for the hematologist but all of them. I didn't know what it was but perhaps it all needed to happen so that a  new doctor could look at my case and apply their knowledge to my “medical mystery” that’s been baffling doctors for years. (side note: the hematologist is an older gentleman so he has more experience than my [close to my age] regular hematologist.)

So, that's my news. On day 41 of the 54-day Rosary novena, I received that wonderful news. I have another blood draw tomorrow to check for autoimmune things and inflammation markers prior to my ophthalmologist appointment on Monday morning. I hope that we get a little closer to the root cause of all my problems with it as well. Fingers crossed.

Anyway, I just wanted to share the news with y'all. I received a letter from my Oblate master while trying to finish up this so I'm going to go read that right now. And, yes, I just teared up because of the timing.  What are the odds that I would receive a letter from my Oblate master (who, along with the other monks, has been praying for my health) with words of encouragement regarding my health while writing this post with an update on my health? God, Your timing is impeccable!

I hope y'all have a lovely rest of the week!

As always, thanks for reading and God bless! :)

I'm Tired. I'm Angry. I Will No Longer Be Ashamed.

I know; I've gone weeks without updating. I have a good reason... which I wasn't going to blog about but I've reached the point where anger has taken over so now I feel like I have to speak out on this.

I stopped writing because I've been sick. Really sick. I know that, in the past, I've shared my health journey because some of you felt you could relate to it and no one else was talking about. A few months ago, someone I really admired and looked up to -- who shall be unnamed -- shamed me into not only staying quiet about it but also into deleting all my past posts about my health. Seriously, try to search for the posts; they're gone.

I won't go into details but let's just say that after our conversation, I felt ashamed for sharing my health journey -- which strongly ties into my spiritual journey. I felt like I was just asking for attention, even though I've never liked any attention and I thought that sharing my experience would help at least one other person who thought they were the only one struggling.

We live in a society that only posts "Instagram-worthy" pictures; who present perfect lives that seem unattainable and are envy-inducing. I wanted to be real and share the good that God has brought out in the middle of the bad. But, no. I was doing it for attention and, furthermore, "who's going to want someone who is always talking about her poor health? No guy will."  Ouch. Twist the knife a bit more because it didn't quite hurt the first time.

I've reached the point where I'm angry. I'm angry at myself for letting the person get to me. I'm angry that this has affected me in a much bigger way than I had wished. I'm angry that I've had to keep quiet and, basically, lie (by omitting what was really going on) to those closest to me.

No, I'm not okay. I was doing really, really well for a while and then, suddenly, my health took a massive nose dive. I haven't been okay for weeks. After a week of back-to-back bad news, I'm tired of having to plaster a smile and act like nothing's wrong. I'm tired, literally and figuratively. I have no energy left to keep up the facade.

There is beauty in suffering. I feel closest to God when my health is as bad as it is now. When I'm at my weakest -- mentally, physically, and emotionally -- is when I see the most spiritual growth. God has blessed me with my crosses (in the form of health issues and the loneliness that comes from being perpetually single and desiring a family) which have made me the woman I am now.

Do you know who I was before I got sick? I was a proud and vain girl. I hated who I was. Being sick has helped me rid of those terrible characteristics I always had growing up. I'm not fully where I want to be in terms of that -- I still have moments of pride and vanity -- but God has mercifully humbled me and continues to do so through these illnesses. If good things come out of my health struggles, I welcome them. I thank God for keeping me from a path that would've strayed me further from Heaven.

And, about the guy thing, you know what? If God wants me to remain single and always have that longing for a husband and children, I will offer it up for those who suffer. If I, as the person who shamed me into staying quiet said, end up single for the rest of my life because no man will want to help me carry my crosses, I know one man who will -- Jesus Christ. He didn't carry His cross and give up His life for nothing. I will just focus on my love for Him and unite my suffering to His. If there is a man, brave enough to accept me as I am, it will be a tremendous blessing but I am resigned to either outcome. It's about doing God's will, not my own.

So, no, I will no longer feel ashamed for sharing my faith journey and my health journey. If I want to ask prayers because I'm having a bone marrow biopsy on the 22nd (which I am; this is why I'm doing a double novena to Our Lady of Montserrat and St. Giuseppe Moscati, beginning today)... because my liver isn't functioning as it should... because my body is destroying my platelets and red blood count without any scientific explanation (which has my hematologist stumped)... because other things in my blood work came back abnormal... because I've been struggling with the depression that comes with everything I've gone through lately, I will.

Anyway, I just wanted to get that off my chest because I've been carrying it around for literally months and I was tired of it. I'm sorry for the rant but I just had to say it. Maybe now I will also be able to recover a bit better; not having to feel so alone and feeling like I should be quiet because no one cares about me or what's going on with me. Yes, I've felt that way for months.

Oh, and if you're wondering what this means in regards to my oblate retreat next month: I don't know. I got cleared by the hematologist to fly but not my primary physician. I should know (hopefully) tomorrow whether she also gives me the okay to go. In the meantime, I'm going to try to rest as much as I can, eat and sleep well, stay hydrated, walk for a minimum of an hour despite the fatigue (doctor's orders because my heart needs it), and keep my stress levels as low as possible so that my body can try to recover before the trip. I still plan on going, even if I have to find the additional funds to be able to afford a roomette on Amtrak if I cannot take a plane. If my doctor says I can't go, even on the train, I will refund anyone who wants their money back (from the GoFundMe fundraiser).

Anyway, now that I've given y'all an update and an explanation for my silence, I think I'm going to go take a nap. I've been feeling very exhausted -- I can't sleep enough hours in the day -- and I need to rest. I will gladly offer some of this up for anyone who could use the prayers.

As always, thanks for reading and God bless!

I Should Be Angry But I'm Grateful

Before I start: happy feast of the Queenship of the Blessed Virgin Mary! I love focusing on this (Mama Mary being crowned Queen of Heaven and Earth) when doing the Glorious mysteries and I will do this extra mystery when I pray my Rosary tonight. Also, happy belated feast of Our Lady of Knock (which was yesterday). I did remember and I wanted to mention it on social media yesterday (Hibernophile in the house!) but I had so much going on that I didn't get the chance.

I've been incredibly overwhelmed in the past week. It's been a rollercoaster of wonderful moments and of low moments that could have become very discouraging but ended up bringing me closer to God. It would be too much to cover in a single post so here's the biggest part of it.

Last Saturday, I went to urgent care for my dizziness since I spent 3 consecutive days dizzier than I was used to. It was supposed to be quick trip since it takes forever and a day to get an appointment with my regular doctor but because of my history of low platelets (and considering that I'd had a lot of headaches over the past month), they wheeled me (I was so dizzy I couldn't walk properly) to the emergency room.

There, doctors first looked at my platelets and iron levels since those could easily be culprits of the dizziness and lightheadedness I've experienced for weeks. My platelets had taken another dip down but were still over the 100k level and it wasn't the lowest I've ever had them so they didn't think it was the cause. Since I had no other worrying symptoms, they discharged me.

Yesterday I had my (now) regular hematology appointment. It was a new doctor. I had low blood pressure yesterday (which can explain the constant lightheadedness) but she explained that my records show that it's normal for me to have low (but not dangerously low) blood pressure; that she herself has them around the same levels. I received the news that my iron and hemoglobin levels (and, basically, everything) were steady and I've been anemia-free for a couple of months now... but the fact that the platelets dipped for the 2-3 time this year wasn't sitting well with her.

They can't figure out why my platelets have been low for years. For a while, they considered that it was due to my folate and iron levels but those seem to have stayed within the normal range (I get the exact numbers in half an hour of when I'm writing them) so they ruled those out. I don't get sick often (as in colds or the flu; I can go years without a cold). I've never had surgery. I don't bleed easily or much when I get cuts or even when I go to the dentist. I continue to be a medical mystery to them for now... but that may change.

The doctor saw how exhausted I was yesterday; you just had to look at my face. You can't fake the fatigue I was feeling. 1) I'm not an actress (my face would easily give me away if I were lying) and 2) my conscience would eat at me if I had lied about that. I told her about when the fatigue hits the hardest, including after the consumption of wheat. She asked me to list all the symptoms I get when I eat wheat. She asked me if I had the same reaction with other carbohydrates (rice, tortillas, etc) and when I said I didn't, she zeroed in on gluten as a possible cause for my lowered platelets.

You know how I've blogged about gluten/celiac blood tests coming back negative in the past? Guess what... the doctors had either lied or they were overruled in the past because it had never been done! I had several doctors say that they were going to test it but they never did. I'm not sure if it was because they were resident doctors and their supervisors overruled the decisions, if the hospital didn't want to administer it until I saw a hematologist and my platelets continued to lower, or if I was simply lied to because they thought I was a hypochondriac with a history of anxiety but, whatever the reason was, it was never administered. They did do other autoimmune tests that came back negative (which is what I think they told was negative when I asked) but never for celiac.

I should be angry about it. I've been telling them for years that I've had a suspicion that my health issues (namely, the platelets) might've been caused by gluten. I noticed that my platelets went up when I went on an entirely gluten-free diet (and I even abstained from receiving the Eucharist for 6-months at one point) and how they go down when I reintroduced wheat into my diet. For whatever reason, nothing was done... until now. Again, I should be angry but I'm not.

I'm grateful that a doctor finally got past whatever loops had to be jumped to get me the tissue transglutaminase IgA test. I'm grateful that God gave me the strength and the courage to drive to the hospital (despite being as fatigued and lightheaded as I felt). I'm hopeful (and, honestly, also a little fearful) that this test may give us the answers we (Mom and I) have been waiting literally years for.

Having a positive celiac intolerance result would mean tweaking my diet even more which scares me in the sense that it would restrict my already restricted diet (can't have dairy, eggs, spinach, and some fish). It will also mean being more pro-active about my spiritual life because I would need to talk to the priests where I usually attend Mass about receiving a low-gluten host which is Vatican approved and which many people with celiac have been able to receive without a problem.

I've been praying about my health for years... since I was an undergrad at the CINO college when I first became aware of my platelets being lower than normal. I've resigned myself to enduring all the health issues for as long as necessary as long as it was God's will. I know that I'm going through all of this for a reason unbeknownst to me but which will be for the benefit of my soul.

At the same time, I've prayed that I get healthy so that I can live out what I believe to be my vocation in a manner that would not be burdensome on anyone else. Even if it takes longer (at least 3 months since I won't get my results for this test until November 20th), I know that it's all part of God's greater plans for me and I just need to accept that with as much patience, grace, and courage as needed... which I know God will give me.

I have so much more to say but I think this is enough for this post. The other isn't health-related so I'll save that for tomorrow or the next day, whenever I am able to. :)

Anyway, I just wanted to thank everyone for their continued prayers. I know that it's because of them that I haven't defaulted into the worried, panic-attack stricken gal I once used to be. :)

I hope y'all are having a great start of the week thus far!

As always, thanks for reading and God bless! :D