Good News: a Possible Breakthrough in my Health Issues

((Before I begin, let me just wish you all a happy feast of Our Lady of Guadalupe! I wrote a bit about the same picture that's hung on my bedroom wall for the past (almost) 30 years on Instagram in case you want to read it.))

I thought I was ready for my hematology appointment yesterday morning. I was cool, calm, and collected. Or, so I thought until I woke up sweating cold that morning. That cold sweat didn't stop until after I saw the hematologist... an hour after my appointment was scheduled.

I kept repeating, "Jesus, I trust in You" from the moment I woke up... 2 hours early. I tried to go through my routine -- breakfast, prayer, and getting ready to go out -- at a slow pace. I had intentionally done it to keep my anxiety levels down. Whenever I felt them go up a bit, I would stop and repeat, "Jesus, I trust in You" three times before I would resume the routine.

Before I left, I stopped and had a conversation with God. Since I was home alone, I said the words aloud. I don't remember the exact words but they were along the lines of "Whatever happens, I accept. If it's Your will, it will be done. If it's good news, I will rejoice and praise you. If it's not good news, I know you will give me the fortitude to endure it. Whatever it is, I will sacrifice sleep and go give thanks at tomorrow's daily Mass."

I drove to my appointment with unusually clear eyesight (I've been having eye problems for months, remember?). I decided to listen to "The Benedict Option" audiobook as a distraction. I took a longer but clearer (read: less traffic) route to my hematologist's office. "If I get there late, I get there late. But I'd rather go calmly than stress myself out," I told myself as I drove to the office.

I got there on time... but I ended up waiting an hour before I was seen. See, the hematologist I've seen for the past two years is out of the country. While it wasn't confirmed, we think it has something to do with his work visa since he's a foreign-born doctor. He had a delay returning the last time his permit expired, too. Anyway, because of this (and the office being unsure of when he will return), they gave me a new hematologist. I was warned beforehand about this; there were rescheduled appointments and blood draws for it for weeks leading up to the day. I just didn't know the actual appointment would have a wait time of over an hour.

As you can imagine, I sat there sweating cold out of nerves. I didn't know if my pancytopenia (the medical term for low red and white blood count and low platelets) was still around; if I was healthier than I was since my last blood draw at the last ER visit I'd had, two months earlier. "Jesus, I trust in You" I said before I prayed the St. Patrick breastplate prayer and texted a good friend to help pass the time.

I was whisked inside and I waited for the doctor once again, this time in the exam room. My noontime alarm went off signaling the time to pray The Angelus and Sext. I had taken my copy of The Little Office of the Blessed Virgin Mary in case I needed it. I took out my Rosary beads from my pocket and began praying the Angelus. I had just finished praying, "And the Word was made Flesh.. *genuflects* and dwelth among us..." and was standing up when the new hematologist came in. "This is it. Jesus, I trust in You," I said internally.

I was ready for whatever God in store for me... or, again, so I thought. I won't keep dragging the story for y'all so I'll tell you exactly what he said.

After introducing himself he said he'd gone over my charts and history along with my latest blood work. The good news was that my numbers had gone up. My white blood count had miraculously jumped up to normal in record time, from 3.6 to 4.6. My platelets went up 33k (from 102k to 135k) and I’m now currently only 5k under normal range. My red blood count and hemoglobin are still a little low but are now closer to normal range. He said that, given my history and my steady (for the most part) numbers, he thought it all pointed to an early rheumatology/autoimmune issue. When I explained that the ophthalmologist had ordered blood work because he also thought I had an autoimmune issue that was causing my eyesight problems (my bilateral optic nerve edemas), he said that it just further confirmed his suspicions. He said that it looked like it was all early stages of whatever was about to unfold and that no treatment would be necessary at the moment; we'll just keep an eye on things.

This is the first time I've come close to getting a diagnosis on anything! I was surprised and relieved. After so many years of dealing with low platelets and the anemia coming and going, here we had a sort-of breakthrough! I immediately thought about how the words "leaky gut" and the theory many people have made that perhaps that's what's wrong with me have popped up in recent weeks. A parishioner friend of mine even lent me a book on healing the leaky gut when I went to Mass last Friday (the beautiful First Friday I wrote about here). That's not even counting the dream I had nearly two years ago in which I dreamt that St. Giuseppe Moscati had examined me and told me to do a bone broth diet to heal my gut; a dream that also featured St. John Bosco. I even screen captured the tweet for future reference.

Y'all know this tweet is old because I haven't used that profile picture in years. Also, my apologies to St. Giuseppe for butchering his first name. It was during the time when I was still learning about him.

Perhaps this is all part of my 54-day Rosary novena intention; I've been praying for better health and the ability to expand my restricted diet. A leaky gut will make it seem like you have allergic reactions to many things -- especially foods -- so this could be the breakthrough I've been praying for! I am definitely going to try healing my gut just in case this has been the issue all along.

Before I end this post, I also wanted to share one more thing the good hematologist said to me. As he was leaving, hand on the door, he stopped and looked back at me and said, "Are you married, planning on getting married, or in a relationship?" I confirmed that I did want to get married one day, but I didn't know when that would happen. He then said what I was not expecting, "With your history and numbers, you can get pregnant. You can have children as soon as you'd like. Usually, there are worries about platelets dipping for people who have ITP or other blood disorders, but it shouldn't be a problem for you." I was completely dumbfounded. The thought hadn't even crossed my mind (for obvious reasons) yet I felt an enormous wave of relief. God willing, I can have babies and not worry about it affecting my health (at least, not my platelets) because it looks like it may all be an autoimmune issue rather than a blood disorder.

I left the office feeling lighter, a lot more hopeful, and intensely grateful to Our Lady for her intercession and to God for everything.

I knew there was a reason why my appointments kept getting pushed back; why I had to keep rescheduling blood draws and appointments. Not just for the hematologist but all of them. I didn't know what it was but perhaps it all needed to happen so that a  new doctor could look at my case and apply their knowledge to my “medical mystery” that’s been baffling doctors for years. (side note: the hematologist is an older gentleman so he has more experience than my [close to my age] regular hematologist.)

So, that's my news. On day 41 of the 54-day Rosary novena, I received that wonderful news. I have another blood draw tomorrow to check for autoimmune things and inflammation markers prior to my ophthalmologist appointment on Monday morning. I hope that we get a little closer to the root cause of all my problems with it as well. Fingers crossed.

Anyway, I just wanted to share the news with y'all. I received a letter from my Oblate master while trying to finish up this so I'm going to go read that right now. And, yes, I just teared up because of the timing.  What are the odds that I would receive a letter from my Oblate master (who, along with the other monks, has been praying for my health) with words of encouragement regarding my health while writing this post with an update on my health? God, Your timing is impeccable!

I hope y'all have a lovely rest of the week!

As always, thanks for reading and God bless! :)

"People Must Really Need the Prayers..."

This was the thought that popped up in my mind when my hematologist said he wasn't able to get the hip bone part of the bone marrow biopsy the first time. I knew that there would most likely be something that had to "go wrong" since I had so many people asking me to offer up my procedure and the pain up for their prayer intentions. I knew when the prayer requests reached the triple digits on Twitter that I would be in for it so I had mentally prepared myself for it. Still, I kept internally asking St. Giuseppe Moscati to guide the hematologist's hands so there wouldn't be a third try.

For those of you know who have gotten one of these biopsies done before, you know this part is the most painful. Ignorance is bliss (for me) when it comes to these procedures so I didn't even look into what would be involved but, oh, I knew that part of my hip bone was (basically) drilled out during this part. I felt the pain down into my leg. Thankfully, it wasn't excruciating.

I'll admit, I had cried prior to the procedure out of nerves but I was amazingly calm throughout it. I think it was because I knew I was covered in prayers due to the (mind-boggling!) 1k+ people who said they would be praying for me via social media. I woke up that morning and it literally felt as I was completely wrapped up in prayer. I don't know how else to describe it except that it felt like I had a heavy blanket of peace covering every inch of my body.

I tried praying the Rosary during the procedure but my mind went blank during the Second Glorious Mystery (I pray the traditional order and it's the Glorious Mysteries on Wednesdays). Instead, I ended up focusing on keeping my breathing even and offering up any pain and uncomfortable moments. Oh, and on keeping my body as relaxed as possible to make it easier for the hematologist to get what he needed. It wasn't easy because you want to tense up your muscles.

I drove myself home afterward... and it was not fun. They did the biopsy on my right side which, of course, means I had to use my right leg -- the leg used on the car pedals. The 4-5 mile drive included a lot of teary-eyed "ouch" moments. Walking up the stairs to my second-story apartment brought a couple more tense moments.

The rest of the day was spent trying to find ways of sitting, laying down, standing, and doing other things that wouldn't aggravate the pain. I was sure my mother was going to tie me down to a chair at one point because I kept getting up to do things I normally would. I'm quite active during the day (out of habit) so it was hard for me not to be a "wiggle worm." lol. It doesn't sound so bad but, oh man, there were a ton more tears before the day was over. I couldn't walk or even sit; I mostly had to lay on my left side but that quickly got old when my entire left side became painful and then numb from having all of my weight on it.

Trying to work was hard. I couldn't balance my laptop on my lap or place it in any position that didn't hurt me. I tried standing up to write it but I was too lightheaded and feeling drained to last longer than a minute. Finally, a bit after midnight last night, I gave up and had to send my editor a message telling him that I was sorry but that this week's assignment would be a day late. I couldn't transfer my work (which I ended up starting on my iPod touch as I lay in bed) from email to the website.

Sleeping was a new adventure. Despite having an adjustable bed, I couldn't find a position in which I was comfortable enough to sleep. An hour (and more exhaustion-induced tears) later -- 12 hours after the biopsy -- I was somehow able to flip myself onto my stomach and I passed out for about 11 hours. Yep, I was that tired.

Today has been a new adventurous day. The pain is worse, in a way. I can move a little easier but the tenderness makes the pain more acute. As I write this, I'm in a very uncomfortable position with my the head of my adjustable bed lifted up as much as possible. My back hurts and part of my left side is numb (again) from all the weight on it but I just thank God that I can move and stand more than yesterday.

I'm just going to keep looking at the crucifix in my room and try to unite my pain with His. Yesterday, the first time I was able to get in bed post-biopsy, I looked at it and I realized that I had never loved Him as much as I did at that moment. Though I can never compare my little pain to his immense pain, I can at least try to understand -- in my fragile human way -- what He endured for the sake of humanity.

So, that's what the journey of a bone marrow biopsy has been. I'm obviously still in recovery mode and will be for a couple more days. I will get my biopsy results on June 5th so please keep that in your prayers. I've resigned myself to getting whatever results may come from it; I just want them to figure out what's been making me sick for so long.

I will continue to pray for those who've asked for prayers. Thank you all so much for all your prayers, love, and support!

God bless you all!