Thursday, May 23, 2019

"People Must Really Need the Prayers..."


This was the thought that popped up in my mind when my hematologist said he wasn't able to get the hip bone part of the bone marrow biopsy the first time. I knew that there would most likely be something that had to "go wrong" since I had so many people asking me to offer up my procedure and the pain up for their prayer intentions. I knew when the prayer requests reached the triple digits on Twitter that I would be in for it so I had mentally prepared myself for it. Still, I kept internally asking St. Giuseppe Moscati to guide the hematologist's hands so there wouldn't be a third try.

For those of you know who have gotten one of these biopsies done before, you know this part is the most painful. Ignorance is bliss (for me) when it comes to these procedures so I didn't even look into what would be involved but, oh, I knew that part of my hip bone was (basically) drilled out during this part. I felt the pain down into my leg. Thankfully, it wasn't excruciating.

I'll admit, I had cried prior to the procedure out of nerves but I was amazingly calm throughout it. I think it was because I knew I was covered in prayers due to the (mind-boggling!) 1k+ people who said they would be praying for me via social media. I woke up that morning and it literally felt as I was completely wrapped up in prayer. I don't know how else to describe it except that it felt like I had a heavy blanket of peace covering every inch of my body.

I tried praying the Rosary during the procedure but my mind went blank during the Second Glorious Mystery (I pray the traditional order and it's the Glorious Mysteries on Wednesdays). Instead, I ended up focusing on keeping my breathing even and offering up any pain and uncomfortable moments. Oh, and on keeping my body as relaxed as possible to make it easier for the hematologist to get what he needed. It wasn't easy because you want to tense up your muscles.

I drove myself home afterward... and it was not fun. They did the biopsy on my right side which, of course, means I had to use my right leg -- the leg used on the car pedals. The 4-5 mile drive included a lot of teary-eyed "ouch" moments. Walking up the stairs to my second-story apartment brought a couple more tense moments.

The rest of the day was spent trying to find ways of sitting, laying down, standing, and doing other things that wouldn't aggravate the pain. I was sure my mother was going to tie me down to a chair at one point because I kept getting up to do things I normally would. I'm quite active during the day (out of habit) so it was hard for me not to be a "wiggle worm." lol. It doesn't sound so bad but, oh man, there were a ton more tears before the day was over. I couldn't walk or even sit; I mostly had to lay on my left side but that quickly got old when my entire left side became painful and then numb from having all of my weight on it.

Trying to work was hard. I couldn't balance my laptop on my lap or place it in any position that didn't hurt me. I tried standing up to write it but I was too lightheaded and feeling drained to last longer than a minute. Finally, a bit after midnight last night, I gave up and had to send my editor a message telling him that I was sorry but that this week's assignment would be a day late. I couldn't transfer my work (which I ended up starting on my iPod touch as I lay in bed) from email to the website.

Sleeping was a new adventure. Despite having an adjustable bed, I couldn't find a position in which I was comfortable enough to sleep. An hour (and more exhaustion-induced tears) later -- 12 hours after the biopsy -- I was somehow able to flip myself onto my stomach and I passed out for about 11 hours. Yep, I was that tired.

Today has been a new adventurous day. The pain is worse, in a way. I can move a little easier but the tenderness makes the pain more acute. As I write this, I'm in a very uncomfortable position with my the head of my adjustable bed lifted up as much as possible. My back hurts and part of my left side is numb (again) from all the weight on it but I just thank God that I can move and stand more than yesterday.

I'm just going to keep looking at the crucifix in my room and try to unite my pain with His. Yesterday, the first time I was able to get in bed post-biopsy, I looked at it and I realized that I had never loved Him as much as I did at that moment. Though I can never compare my little pain to his immense pain, I can at least try to understand -- in my fragile human way -- what He endured for the sake of humanity.

So, that's what the journey of a bone marrow biopsy has been. I'm obviously still in recovery mode and will be for a couple more days. I will get my biopsy results on June 5th so please keep that in your prayers. I've resigned myself to getting whatever results may come from it; I just want them to figure out what's been making me sick for so long.

I will continue to pray for those who've asked for prayers. Thank you all so much for all your prayers, love, and support!

God bless you all!


Monday, May 13, 2019

I'm Tired. I'm Angry. I Will No Longer Be Ashamed.


I know; I've gone weeks without updating. I have a good reason... which I wasn't going to blog about but I've reached the point where anger has taken over so now I feel like I have to speak out on this.

I stopped writing because I've been sick. Really sick. I know that, in the past, I've shared my health journey because some of you felt you could relate to it and no one else was talking about. A few months ago, someone I really admired and looked up to -- who shall be unnamed -- shamed me into not only staying quiet about it but also into deleting all my past posts about my health. Seriously, try to search for the posts; they're gone.

I won't go into details but let's just say that after our conversation, I felt ashamed for sharing my health journey -- which strongly ties into my spiritual journey. I felt like I was just asking for attention, even though I've never liked any attention and I thought that sharing my experience would help at least one other person who thought they were the only one struggling.

We live in a society that only posts "Instagram-worthy" pictures; who present perfect lives that seem unattainable and are envy-inducing. I wanted to be real and share the good that God has brought out in the middle of the bad. But, no. I was doing it for attention and, furthermore, "who's going to want someone who is always talking about her poor health? No guy will."  Ouch. Twist the knife a bit more because it didn't quite hurt the first time.

I've reached the point where I'm angry. I'm angry at myself for letting the person get to me. I'm angry that this has affected me in a much bigger way than I had wished. I'm angry that I've had to keep quiet and, basically, lie (by omitting what was really going on) to those closest to me.

No, I'm not okay. I was doing really, really well for a while and then, suddenly, my health took a massive nose dive. I haven't been okay for weeks. After a week of back-to-back bad news, I'm tired of having to plaster a smile and act like nothing's wrong. I'm tired, literally and figuratively. I have no energy left to keep up the facade.

There is beauty in suffering. I feel closest to God when my health is as bad as it is now. When I'm at my weakest -- mentally, physically, and emotionally -- is when I see the most spiritual growth. God has blessed me with my crosses (in the form of health issues and the loneliness that comes from being perpetually single and desiring a family) which have made me the woman I am now.

Do you know who I was before I got sick? I was a proud and vain girl. I hated who I was. Being sick has helped me rid of those terrible characteristics I always had growing up. I'm not fully where I want to be in terms of that -- I still have moments of pride and vanity -- but God has mercifully humbled me and continues to do so through these illnesses. If good things come out of my health struggles, I welcome them. I thank God for keeping me from a path that would've strayed me further from Heaven.

And, about the guy thing, you know what? If God wants me to remain single and always have that longing for a husband and children, I will offer it up for those who suffer. If I, as the person who shamed me into staying quiet said, end up single for the rest of my life because no man will want to help me carry my crosses, I know one man who will -- Jesus Christ. He didn't carry His cross and give up His life for nothing. I will just focus on my love for Him and unite my suffering to His. If there is a man, brave enough to accept me as I am, it will be a tremendous blessing but I am resigned to either outcome. It's about doing God's will, not my own.

So, no, I will no longer feel ashamed for sharing my faith journey and my health journey. If I want to ask prayers because I'm having a bone marrow biopsy on the 22nd (which I am; this is why I'm doing a double novena to Our Lady of Montserrat and St. Giuseppe Moscati, beginning today)... because my liver isn't functioning as it should... because my body is destroying my platelets and red blood count without any scientific explanation (which has my hematologist stumped)... because other things in my blood work came back abnormal... because I've been struggling with the depression that comes with everything I've gone through lately, I will.

Anyway, I just wanted to get that off my chest because I've been carrying it around for literally months and I was tired of it. I'm sorry for the rant but I just had to say it. Maybe now I will also be able to recover a bit better; not having to feel so alone and feeling like I should be quiet because no one cares about me or what's going on with me. Yes, I've felt that way for months.

Oh, and if you're wondering what this means in regards to my oblate retreat next month: I don't know. I got cleared by the hematologist to fly but not my primary physician. I should know (hopefully) tomorrow whether she also gives me the okay to go. In the meantime, I'm going to try to rest as much as I can, eat and sleep well, stay hydrated, walk for a minimum of an hour despite the fatigue (doctor's orders because my heart needs it), and keep my stress levels as low as possible so that my body can try to recover before the trip. I still plan on going, even if I have to find the additional funds to be able to afford a roomette on Amtrak if I cannot take a plane. If my doctor says I can't go, even on the train, I will refund anyone who wants their money back (from the GoFundMe fundraiser).

Anyway, now that I've given y'all an update and an explanation for my silence, I think I'm going to go take a nap. I've been feeling very exhausted -- I can't sleep enough hours in the day -- and I need to rest. I will gladly offer some of this up for anyone who could use the prayers.

As always, thanks for reading and God bless!