Tuesday, March 17, 2020

The Coronavirus Pandemic from the POV of a Chronically Ill Catholic


I just got off the phone with my doctor. She told me to ask friends to get the medication she ordered for me (and, eventually, food) because I need to stay at home during this time.

I would be lying if I said I wasn't worried.

I would be lying if I said I didn't experience at least one minor anxiety attack per day when (I'm sure) well-meaning people trying to "prepare" me with stats and facts go overboard.

I would be lying if I said that I don't cry every day from feeling overwhelmed by everything going on. Putting aside my own selfish fears for myself, as an HSP, I easily absorb the feelings of those around me so I feel it all.

The CDC released a list of 10 medical conditions that are most at risk for "severe coronavirus illness". On that was list was blood disorders... which I have.

I've suffered from chronic thrombocytopenia (low platelets) for over 12 years now. I've had chronic anemia (on and off) for the past 5-6 years. I also occasionally have pancytopenia, meaning that my platelets, red and white blood counts are all under normal count from time to time.

I also have additional factors that put me at risk -- a liver issue they're still trying to figure out, malnutrition from the multiple food allergies that have severely restricted my diet (I can only have 4-5 foods... period), and I'm underweight from the restricted diet and recently emotional toll of family and relationship problems I faced. They're also trying to figure out which autoimmune disease may be causing my bilateral optic nerve edemas as well as my other health problems. Right now, the two that are most likely are MCAS or Sjogren's Syndrome.

My mother, who is 65, works in a convalescent hospital where about 99% of the patients are over 75 years old. She has her own medical issues that put her at risk. With the news and everyone talking about the coronavirus 24/7, is it any wonder we're both stressed out?

That's part of the reason why I decided to take a break from Twitter. Yes, the other part was because people were being rude. I've received threats. I've been stalked. I've been made to feel like I'm absolute trash unworthy to call myself a Catholic or even a decent human being. I've had people twist my words and/or imply that I was an idiot because I've asked for prayers when I've faced difficult situations.

Some people act like they know my body and my medical history better than I do, scaring me by telling me my heartburn (which I've dealt with since my teens) is really a symptom of a heart attack and that I'm a complete idiot for not going to the ER because they are a doctor/EMT/nurse and they know better than I, a simpleton, do. Yes, please, advise me to go to the ER for a bad GERD/heartburn flare-up almost identical to all the those I've experienced before... during a time where it could be potentially dangerous for me to contract something more severe. And, for the record, yes, I just spoke to my doctor about how bad the heartburn got and she advised me to take medication, go on a bland diet, and drink a lot of water for it. But, please, continue telling me I'm an idiot for not going to the ER.

All of these things, plus news of the pandemic, have been taxing on my mental health... which exacerbates the physical symptoms, acid reflux included. It's a never-ending cycle, y'all.

Crying is how I release the tension when I feel overwhelmed. Crying... and prayer.

Prayer hasn't been easy for me these days. My mind wanders easily; jumps straight into all the fears for my health and those of my loved ones (mother, brother, friends, etc.) I can't concentrate. I occasionally have to force myself to go through my daily prayer routine but I get it done. This is what the devil wants. He wants us to focus on ourselves and our fears (he loves when we live in fear) and turn our back on God during these difficult moments. While it's hard, given our fallen human nature, to not think about our fears and ourselves, we must try.

I was blessed to have prayed the Rosary with two of my good friends via FaceTime audio earlier today. It was one of the handfuls of times this week I was able to concentrate a bit better while praying. I hope to continue being able to pray with them (and other friends) while we're on lockdown because it does help. I'm stuck at home all day and since my mom works 5 days a week, I'm often by myself. I know I'm an introvert but science has proven that we do need a little bit of human interaction now and then, especially those of us who are sick.

I agree that it's been awful to have public Masses canceled but I understand why the decision was made. Trust me, I have prayed for months to be able to attend daily Mass... and I was finally getting that desire fulfilled. I went from attending daily Mass to having to stay home because of the risks, something I struggled with obeying. My initial reaction was "flip that table! I'm going to Mass, virus or no virus!" In fact, when I went to my last Mass a week ago, I went knowing I was risking it... and I spent the entire Mass with palpitations. After that impulse calmed down and I really thought about how God would want me to take care of the body He gave me -- and knowing that I was dispensed from the obligation of attending Mass -- I made the decision to obey. Obedience is a pillar in the Benedictine spirituality and one that has been hard for me to cultivate as a very stubborn and independent person. I keep trying to remember that those who are spiritually more mature and have more medical knowledge than I do have placed these rules for a reason so I will humbly submit to them.

Thankfully, I've always known of additional resources for when I'm stuck at home -- I've even written two articles on it for EpicPew (4 Ways to Experience the Mass Even If You're Stuck at Home and Discover These Underutilized Catholic Websites And Resources!). I can watch Mass, even do holy hours, via online websites. Does that mean it's an easy transition for me? No! It's still difficult for me to be away from my parish and the Sacraments. Do you think I want to be away from my Beloved, in the tabernacle or the adoration chapel, just when I've realized that I want nothing more than to be His future bride as a consecrated virgin? No! It's especially painful for me right now; right when I've finally figured out what my true vocation is. Still, I obey... and I remind myself that He is with me, even when I'm at home.

Oh, and for those who may be new to the blog... this isn't the first time I've been without the Sacraments for a long period of time. I've gone several months without the Eucharist before (when I was put on a gluten-free diet and before I was able to receive low-gluten hosts) so this isn't new territory for me... but it's somehow now harder than ever because of where I am in my spiritual life and vocation discernment.

Instead of dumping on poor Archbishop Gomez like so many other people are doing, I'm going to personally thank him. As a chronically ill Catholic, I know what it feels like to be thought of as a burden to others -- to those who are healthy and are "punished" because some of us are physically weaker than them. I understand the frustration of those who want to be able to attend Mass and receive the Sacraments but can't because "weaklings" like me could be exposed to something, if not directly than through contact with someone in our family who is healthy and attended Mass but was possibly infected by someone else who is in a low-risk group. Yes, we need Christ and the Sacraments now more than ever, but he made an extremely difficult decision because he, as the spiritual father of the Los Angeles Archdiocese, wanted to err on the side of caution. It's called prudence and it's a virtue, y'all. And, who says God isn't with us in our homes and wherever we are at all times?

Do you think it was a decision Archbishop Gomez (and, likewise, other spiritual leaders across the States and worldwide) made lightly? No. I've heard from several sources that those closest to our Archbishop say it was a difficult decision for him to make; one that weighed heavily on him. He cares about us and our well being, no matter what some people say. I don't even want to hear from those of you who are calling him a coward or saying that he cares more about our bodies than our souls. Now is not the time to be uncharitable. Now is the time to get together and pray for our priests who are at the front of the line. They are the ones who, along with those in the medical fields, will be dealing with folks severely infected with the virus. They will be administering the anointing of the sick and/or last rites. They are the ones who will risk their own safety and health for others.

Need I remind y'all that receiving the Eucharist frequently is a luxury we've all gotten used to.. and often take for granted? I've read that St. Therese only received it once a month. Those who live in rural areas who share a priest with multiple other communities don't have that same luxury we do. We have spiritual communion we can do that is completely valid; something we can do multiple times per day from what I've learned.

We have the gift of technology that allows us to watch Mass being celebrated. We can get together with others at a distance to pray together; to bring comfort to one another during these trials through a variety of different platforms. I even had the opportunity to receive impromptu spiritual direction via FaceTime because I was unable to leave the house at the last minute yesterday (guess whose car broke down... again). We have so many resources at our disposals and we have so many opportunities to use social media and the internet to spread the Good News and bring God to others, yet we're using it to tear one another apart; to bring negativity and division instead of unity.

I know that my saying all of this will fall on deaf ears to some but I hope others will try to see things from the POV of someone like me.

I don't want to see negativity on my social media timelines, it doesn't do me any good -- emotionally, mentally, spiritually, or even physically (since my emotional health tends to be closely tied to my physical wellbeing).

I don't want people attacking anyone else, whether they're personally attacking me or someone else whose views differ from theirs.

I want us to unite, as the body of Christ, and pray for one another. Not just for those of us a risk but everyone else. Odds are you know someone -- a family member, a friend, a coworker, an acquaintance, your own parish priest -- who is at risk. Pray for them.

Pray for those in the medical field. Doctors, specialists, nurses, EMTs, even the staff at clinics and hospitals. They are at the front of the line... and then go home to their families who are also put at risk.

Pray for priests, even the young and healthy ones, who will witness so much suffering -- even if that suffering is in the form of devout parishioners begging them to do "underground" Masses because they're so desperate to receive the Eucharist.

Pray for those who have been infected, whether they're in recovery or are still suffering. Pray for their loved ones who hurt seeing them suffer.

Pray for the souls of those who've lost their lives due to this virus as well as their families and friends who are grieving.

Pray for those who are poor in spirit; those who reject God and those who don't know Him out of ignorance.

If you're a fellow chronic illness sufferer, may I suggest offering up our aches and pains -- physical, emotional, and mental -- for others? We have such a gift to give by uniting our suffering with that of Christ on the Cross. As Pope St. John Paul II reminded us in Salvific Doloris, we can offer up our suffering for the good of others. Think about it, Jesus was surrounded by those who were suffering before He Himself suffered the agony on the Cross. He knows what we're going through... and knew pain and agony far worse than we will experience. The graces He will pour out into the world will be greater and sweeter because He knows how much pain we're in and how much courage it takes to endure the pain for the sake of others.

Anyway, I just wanted to put my two cents in because I haven't seen anyone else share anything close to this on social media. Granted, I'm not on Twitter right now (well, not a public account) but I'm sure something would've eventually trickled in through friends.

I hope you're all trying to stay as calm as possible during this time. I know it's much easier said than done. However, I also think that we can grow by leaps and bounds during this time. God wanted us to be alive at this point in time for a reason. God will undoubtedly help us learn how to better achieve sainthood through these difficult circumstances, we just need to be open to it.

Please remember His commandments: Love Him first and foremost and love thy neighbor as thyself. Praise Him even when things seem to have hit rock bottom (a la Job) and be charitable towards one another.

Alright, getting off my soapbox now. I hope you're all doing well (all things considering).

As always, thanks for reading and God bless! :)


4 comments:

Unknown said...

Thank you Melissa for the wonderful post. It has made me appreciate what I have taken for granted regarding the sacraments. May God continue to fill you with His grace in your daily life.

AnneMarie said...

Thank you so much for sharing your perspective! You and your mom have been on my mind lately. I hope that you ladies make it through all this okay.

I think all of our church leaders are being very courageous right now. For those who have suspended Mass and those who haven't, I know that they must be facing immense pressure at making difficult decisions as they try to care for their flocks' spiritual and physical health. We just received word today that our archdiocese is suspending all Masses, and while it's super sad for us, it's also a beautiful chance to pray in solidarity with those around the U.S. and around the world who don't have access to the Sacraments like my family does.

Emily said...

I'm shocked that healthy people are angry that someone with a weak immune system - like yourself and so many others - could get *them* sick. I've been fearing just the opposite! That I - a person without a compromised immune system - might unwittingly become a carrier of the virus and spread it to a person *with* a compromised immune system.
And thank you for your blog post. I've realized our bishop must be getting so much flack for his decision to close public Masses yesterday. I'm going to do what I can to give him some encouragement to let him know I appreciate the difficulty of his decision.

Veri Blossom said...

I am so sorry that you have been dealing with ugly comments and nastiness online. And I'm sorry if the previous comment I left when I checked in last time contributed to your anxiety and stress. (I had shared it with others and thought it would help. I also realized like the complete goof that I am, I forgot to leave the link, so I'm sorry for any confusion I caused.) I did take it afterward as a sign that God would take care of you and your family.(And He doesn't need my help to do that.) You have been in my thoughts and prayers throughout this time. I can't stress enough it seems how sorry I am. Please know that you and your family are valued and cared for, not only, though certainly first and most by God, but also by others who have been helped by your presence and testimony for Christ. Prayer even if you can't do what you'd like, is something that I believe can help us all through this. I have not prayed the way I have wished to since I began this Lenten season, but that has made me more mindful and grateful for the gift of prayer and what I do manage. There is a Novena I've considered praying in regards to this season we all find ourselves in. However, I don't wish to impose anything on you that you and the Lord may already have handled. Once again, I'm sorry if I inadvertently added to your worries. Please know I'll pray as I can for you and your family.